Earlier in the week we found out that the all of Gavin's chromosome's are normal. Praise God for the great news. During the amniocentesis they also send lab to look for nueral tube defects such as spina bifida. There are two tests that are sent. One of the tests is a positive or negative for a nueral tube defect and that test came back negative. The other test is a number. This test came back high. The doctor is "perplexed" as to why one would be high and the other be negative unless it's related to the Dandy Walker Malformation. Due to the concern I will have an MRI to look at Gavin's brain and spinal cord when I am around 24 weeks. Currently I'm 21 weeks 5 days. The doctor also said that she is going to look to make sure that the anomalies that Gavin has do not go along with any genetic or metabolic syndromes. We have a doctor's appointment on Thursday and she said that when we come we will discuss this. If there are certain genetic syndromes that they are concerned about then they can test the amniotic fluid that they already have in the lab for those. Please keep praying. I know God is hearing our prayers. We continue to get good news although the doctor's are still very concerned about Gavin. It is so hard for me, because I want someone to be able to tell me that my baby will be okay, but I know the reality is no one can tell me that. I still have good and bad days, but the good days definately outweigh the bad days. I feel like I am on a rollcoaster, that I never wanted to be on, but I know that God will and has already taught me a lot through this experience. I know without God, my amazing husband, my sweet friends and family that I would never be able to get through this. Please keep praying that Gavin will be "healed" and that other's may see Christ through this experience. I am supposed to have a doctor's appointment with my OB today. They plan to check my thyroid levels and my cervix to make sure they are both normal. I am also going to Care Now at 0800 when they open. I'm not feeling good and I think I have strep throat. I don't know if my OB will want to see me if I'm sick. I've only been able to sleep 3 hours tonight due to a sore throat and not being able to breathe very well out of my nose. Hopefully I can get some antibiotics today and start feeling better before I have to work over the weekend. Thanks for the continued prayers. I will continue to keep you posted as we go through this journey with Gavin.
Love to all,
Melissa
About Me
- Melissa
- Texas, United States
- I am happily married to Ellis. We were married on May 9th of 2009 (the best day of my life). I am a nurse in the NICU (neonatal intensive care unit). Ellis is currently in school full time finishing up his basics and is also working as a care partner at the hospital. He plans to attend nursing school. On December 19th of 2010 we were blessed with our son, Gavin. Gavin was with us for 11 short days (that we are extremely grateful for) before he passed away. He is now with our Father in Heaven, where we look forward to seeing him again someday. We are currently expecting our second baby, a little girl. She is due in May of 2012. We have a chocolate lab named Sadie and a yellow lab named Lucky. They are both a little over two years old and a lot of fun. I enjoy learning more about God, traveling, shopping, and spending time with my husband,friends,and family. We love God and know we are blessed beyond measure.
Anything we can do at tehe Dandy-Walker Alliance (www.dandy-walker.org) to help?
ReplyDeleteThanks,
Eric